Acclimating to home

Hello all,

Scott is still trying to get acclimated to being home.  To my surprise, he was struggling a bit with leaving the hospital because it feels like a "safety net" for him - he knows that if something was wrong, help would be there quickly.  He was there a month - that's a long time.  I understand now how he was feeling - being home has taken some adjusting to.  The hospital bed we have at home isn't nearly as nice, and he has to physically do more for himself.  He also started experiencing the side effects of the chemo once he got home, so he hasn't been feeling that great.  Thankfully, those seem to be passing now.  Neil is working from our house during the day until I get home from work so someone is always there to take care of him.

He doesn't want any company right now - not until he feels a bit better after the chemo & the side effects are gone.  Once he feels better, I know he'll welcome the change of pace.

Physical therapy is finally starting today.  He has a full day between that and having to go to Deerfield for labs.  (At least it's not Miami!)   He still needs a lot of assistance moving around, so i'm hopefully about physical therapy helping him.

We went down to Miami to get his stitches out on Monday - the incisions are healing nicely.

Overall, the pump is doing it's job and the pain is down a bit.  It's not gone by any means, but it's progress.  He is still on some oral pain medicines and will be for awhile.  If he continues to see improvement in his pain from the pump, they'll look at decreasing the oral meds further. 

Right now, he's scheduled for his next round of chemo on the 26th.  We'll know more as that date nears, and will no for sure whether or not he can have chemo that day.  I'll do an update sometime next week so that you all know the status.

Take care,
Amy