4th Treatment - Almost Done

Hey everyone.  Well, it's Friday.  One more day till I fly the coup and get back home.  I can't wait.  It's been ok here.  The staff here is great.  And my room isn't bad (cable could be better though).  But I really wanna go home.

Been pretty tried since I got here.  Probably cause there is nothing for me to do.  I watch TV or my DVD player all day.  Not the most stimulating thing to do.  Amy and I did play chess yesterday, was a tie.  Don't think either one of us was really focusing on the game.  All of a sudden we look down at the board and we are both in check.  We made it a tie.

Been playing Backgammon at night with Dad.  Manage to win a game from time to time, but have a hard time focusing.

Other than that, things are pretty status quo.  The only new thing is that 2 week protocol seems to be working out.  I'm just hoping it stays this way.  I would love to be done in October.  Then I can do some traveling.  Our first 2 trips are already planned.  Charlotte to meet my Godson (Wade) and then Indianapolis to meet my nephews (Jeremy and Parker).

Hope everybody else is doing ok.  I'll post more once I get home.  Thanks everyone!!

Inpatient #2/Treatment #4 has started

Hi everyone! Amy here - I hope everyone is doing well.

Just checking in from the hospital as we start Scott's inpatient week. We'll be here Tuesday through Saturday this time, as the Doctor couldn't be here yesterday. Things are uneventful right now - Scott is napping and his pre-meds have started. We hope the whole week isuneventful. He'll be bored to tears, but in this situation, uneventful is good. It was so weird when we got here this morning - we knew exactly what to do and where we were going and the nurses on the floor recognized us. Sometimes, it crazy to realize how "routine" this has all become. We're anxious to see if the two week cycle works well - that could mean he'd be done with chemo as early as October. THAT makes him happy!

We started the week with amazing news, though - we are now an Uncle and Aunt to two amazing miracle nephews! Jeremy Issac (5lbs, 12oz) and Parker Alexander (5lbs, 4oz) Geller came into the world on Sunday. They are in NICU but are doing great and Deidra kept those two in until 34 weeks! They have had a long 12 weeks on hospital bed rest because the boys wanted to come out at 22 weeks, but they kept their eyes on the prize and life is good. :) The boys should get to come home in a couple weeks.

We can't wait for Scott to kick Cancer's butt and come see them, and our adorable Godson in Charlotte.

We'll keep everyone posted during the week. Thanks, as always, for your love and prayers - we are so grateful!

~Amy :)

No Title

Well, let me give everyone an update.  I'm doing ok, but I don't really know what to say.  Amy did a good job of an update of what's going on with my condition, so there's nothing new on that front.  And I feel ok.  Just run down and tired.  So i plan on getting to bed early tonight and getting a good night sleep.  Pleasant dreams everyone!!

3rd treatment complete

Hey everyone.  I'm doing ok.  Just tired and run-down.  I slept most of the day, but I did spend a couple hours working.  Everything else is doing good.  I promise that I will put up a full blog post tomorrow.  Just wanted to let everyone know I'm doing ok.

Checking in from Treatment 3

Hi all! Amy here - sorry we didn't get to update sooner. The "cubicle" we're in today is on a side of the building with seemingly no cell signal and i've been having computer issues. SO - onto what you want to know - Scott is doing pretty well (considering!). He didn't get that severe wave of nausea when they started the manual chemo like he did last time. He just had dinner, too. It's another long day - we hope to be leaving by 11pm this time. We had more nice nurses again today - they really do take good care of him here. We're hoping the nausea stays away for the rest of the night. He has a slight headache, but he's managing it.

Also, Scott has decided to go ahead and try doing the chemo treatments every two weeks, per his doctor's recommendation. Every two weeks is normal protocol for this type of cancer in kids, but there is very little data to support this in adults (remember, he's special!). For kids, chemo every two weeks has shown a slight improvement in survival rates, so that's all he needed to hear. It can be variable - we'll have to see how his blood counts look. So for now, we're scheduled for the next inpatient chemo on April 26th - 30th. He'll also be getting slightly different immune booster shots and we're going to try doing them ourselves - which means I get to administer them (insert evil laugh here! bwahahaha!)

Scott says hi to everyone and sends his love to all. He's going to post tomorrow while he's home recovering.

Thanks for your love and concern - we appreciate it more than you know!

~Amy

Night before my third treatment

Well, it's Sunday night.  Tomorrow morning, we head back down to Miami.  If I'm being truthful, it's really not bad.  Out of a 17 to 18 hour day at the Cancer Center, the part that truly sucks is a window of about 45 minutes to an hour.  After that (and before it), it's really just being hooked up to a hydration bag.  And then of course there is a lot peeing!!

Of course, the anxiety is back.  I now know what to expect, but I don't know how much of what I went through last time was the result of me making myself sick in anticipation of what was to come, or what because of the drugs.  I'm pleading with whatever may be out there to help me get through this, but after the hour or so of "pushers" begin complete (pushers = chemo in three syringes injected -vs- drip bag), I should be ok.  I'm going in prepared: DVD player, my book (of course), iPod, The West Wing and i'm having Dad bring his backgammon game to play (was fun when I learned last time I was in the hospital).

Well, I'm off to pack, have dinner and get to bed early.  I won't be posting tomorrow, but I will have Amy post an update.  Talk to you all soon.