Wednesday, April 25, 2012

Rest in Peace

Loved ones,

Scott passed away this morning at 4:35am and is finally at peace.  The pain and fear is gone, and I know he is already watching over us.  His suffering is over.  "Rest in Peace" - I never truly understood those words until now. 

When I was writing my post last night, I was so fearful that he would continue to suffer and linger for many days, but it turns out he was waiting for his nephew's birthdays to pass like he said he wanted to.  The day he found out that he had only days left, he asked what date it was.  We told him it was April 16th, and he was scared that he would die on the 24th, on his beloved nephew's first birthdays.  He wasn't going to let that happen, and if you know Scott, that shouldn't surprise you at all.

The funeral will be on Friday at 10:15am.

The funeral home is the Beth Israel Memorial Chapel
11115 Jog Road
Boynton Beach, FL 33437
http://www.bethisraelchapel.com/

The cemetary is the Eternal Light Memorial Gardnes
11520 State Road 7
Boynton Beach, FL 33437
http://maps.google.com/maps/place?q=eternal+light+memorial+gardens&hl=en&cid=14839868057363837533

This will not be the last post on this blog.  In the coming days, I have much to say and share.  I want to post pictures and stories about the wonderful man he was, and I want all of you to have the opportunity to do the same.

I'm so, so sorry for your loss - it's not just me or his family - we know all of you will miss him everyday.  He touched so many hearts.  Please keep your good memories of him with you to make you smile.  He made a difference in this world.

Love,
Amy

Tuesday, April 24, 2012

Checking in

Friends and Family,

We are still doing our best to keep Scott as comfortable as possible.  The care he has been receiving at the hospice facility has been good.  He is sleeping all the time now and is no longer lucid or talking at all.  It's been devastating to watch him fighting with the pain and the anxiety, but now he's only stirring occasionally.  It's so frustrating to me that the cancer rapidly took over his body in the last several months, but the time it's taking for the suffering to end has been excruciatingly slow.  We all just want his suffering to end and for him to be at peace.  I'm not sure if he's still fighting inside or it's just the fact that, before cancer, he was totally healthy and strong - this isn't supposed to happen at his age.  It's so painful to watch my beautiful husband going through this.  Please keep praying that he can be taken home and be with the loved ones he's lost soon.

I will write a post when I can to check in with you all.  For those of you unaware of Jewish traditions, the funeral will be held very quickly after he passes - likely within 48 hours.  I won't be able to give you much more notice than that. 

There are no words to convey the gratitude myself and his family have for all of the support and kindness we have received.  There's so many messages I have not been able to respond to yet.  Please know that I am getting them and so appreciate them.  I know many of you have worried that I am alone and please be assured I am surrounding by love and support.  My family is here and taking care of me, our home and puppies.  Scott's family (which is large) are all here for me, as well.  I will have a long, different type of journey ahead after he passes, and my friends and family are all "on deck" to be there for when I'm ready for them.  Many of you (you know who you are) have been patiently waiting for this part of the struggle to pass and understand that I will need you more for the next part - thank you for that.

Love to you all,
Amy

Sunday, April 22, 2012

An update - we've moved

Friends and Family, We have had to move Scott to a hospice facility today. While he was getting good care at home, the care he needs the most requires him to be in a facility so that they can give him IV medication and keep him more comfortable. The oral medications were not doing enough to control the pain and anxiety he is experiencing. He's been aware of what is going on most of the time (that started to noticebly decline yesterday and today) and he is scared. He doesn't want to die. It is the most horrible thing I have ever had to witness in my life. We made the right decision to move him and hope to have him feeling more comfortable soon. We are now on the Hospice floor at Florida Medical Center in Lauderdale Lakes. http://www.fmc-campus.com/en-US/Careers/Pages/default.aspx. As the evil cancer continues to take over, his ability to hold normal conversations is almost gone. I expect that with the increase in medicine, that will continue to be the case. He has been able to say his goodbyes, and we have been able to say ours. We all just want him to be at peace now. Please hope and pray for his comfort and a speedy, peaceful passing. I will continue to keep everyone posted as best as I can. Thank you to all that have sent their love and support and to the family and friends that are helping us get through this. Sadly, the hard part is nowhere near over - life without Scott will never be the same. With Love, Amy

Thursday, April 19, 2012

Scott is home

Friends,

Scott is home and under the care of hospice as of yesterday.  Please feel free to come visit him when you are ready, if that's what you wish to do.

As his spouse, I get asked a lot "what do I say"?  If you don't know what to say, I totally understand.  I don't even know what to say to my husband other than I swear to take care of him and that I will love him forever.  There just are no other words.  If you come to see him, all you have to say is that you love him.  That's all that needs to be said.  He may ask you a question and get you talking about something else and if he does, just go with it.  Let me also assure you, that if it's too hard for you to see Scott going through this - I get that too.  I don't want to see Scott like this, either.  It's heartbreaking that a beautiful man, my beautiful husband with the most beautiful blue eyes I've ever seen, is so sick.  Just do what you can.  I understand and Scott understands.  We all cope differently and I completely respect that.

As of today, he's lucid most of the time.  When he sleeps, the drugs have the effect of making him say weird things and make a lot of hand gestures (he either writes, or drives a stick-shift in his sleep most of the time).  I think you'll be happy that you'll get to have a good conversation with him.  He is using an oxygen mask, but is able to take it off from time to time to say something to you.  Please know that we don't know if that could change day-to-day.  I will keep everyone posted on that as best as I can.

I've asked over and over again if he's okay with so many people coming by and he keeps saying yes - he wants to see his family and friends.  He wants to say goodbye.  Seeing his nephews made his heart sing, and his Godson will be down shortly.  He smiles a lot when they are around.  He's happy when people remind him of funny stories and moments they have shared with him. 

His coworkers friends came by today and you should have seen how amazing he was - making them laugh.  There were 7 of them and he had them all cracking up.  He told them when they left it was a honor and a privelege to work with them, then cried so hard after they left because he just wants to be able to go back to work and that this wasn't happening.

He's so considerate of others, even through this.  When the transport guys in the ambulance brought him home - he was still on the stretcher asking them if his wife could go get them something to drink.  Even at the hospital this week, despite being in so much pain and so uncomfortable, he'd tell the nurses and techs "bye man - have a good day!".  He's amazing.  We are all so lucky we've had him in our lives. 

If you don't already know how to get a hold of me to make arrangements for coming by, my email address is amygell88@gmail.com, or my cellphone is 954-464-0019.  Call or email me and I will try to respond when I can.  Please bear with me - my phone is ringing of the hook and my inbox is ridiculous - there's just so many people in the world that love Scott.  Also, please call before making a long drive here - things can change at any time and we may need privacy for a bit.

If you can't come see him and you want to get a message to Scott, leave a comment on the blog or email me - I promise I'll get it to him.

Please continue praying for his comfort.  The pain is sometimes very bad. Hospice is doing what they can and is here around the clock taking care of him.

Thank you for all the help, love and support so far - I know there's more to come and there's will be much more of a thank you to come from me later.

With Love,
Amy

P.S.  Before I publish this, I just wanted to include my all-time favorite picture of Scott.  He look so handsome - that smirk is so Scott.






Monday, April 16, 2012

The worst post I've ever had to write

Friends and Family,

This is the worst blog post I've ever had to write.  I have to tell you that Scott's chemo adventure is coming to a very unhappy ending.  We were told today that Scott has only days left with us - maybe as much as a couple weeks.  His cancer is evil and relentleness and will not stop.  The time has come for hospice and to focus on keeping him comfortable.  We took him to the hospital in Miami this weekend because his breathing has become extremely labored.  The tumors in his lungs have started to take over and there is a lot of fluid in his lungs.  There are now tumors in his elbow and his knee.  There will be no more tests to see if it's anywhere else - there is no need to know anymore.  All we have to know right now is that he will be comfortable, and his Dad and I will be make sure of it.  I know I normally share so many details with you about everything that's happening, but the truth it, it's not really relevant anymore.  This is what we need to know - that he's being taken care of and that he'll be kept comfortable.  His Doctors have all be en amazing and have done everything they could for him. 

I am devestated.  We are all devasted.  This is the most unfair thing i've ever experienced.  I know you are all going to ask if we're ok and the answer is no - but we will be in time.  We are as ok as we can be right now.  We hope to bring him home for hospice on Wednesday.  My next posts will be about when he's home and when you can come see him.  If you are able to come see him, please be prepared to see him tired, and heavily medicated.  I'm sorry you can't see him in a better state - things just happened so fast.

I'm so sorry that you and me and the world has to say goodbye to the most amazing man. 

Thank you for the love and prayers and support.

Love,
Amy